Smells like Narcolepsy

Hey, friends. Since my last post about my battle with sleepiness, I have been to a sleep consultation and talked more to people with sleep disorders. I have a sleep study scheduled for the beginning of August, so I will finally get to explore treatment of this problem I’ve dealt with nearly 30 years. After spending 10 minutes talking to a sleep specialist and explaining my symptoms, he said it definitely sounded like narcolepsy without cataplexy. That last part is something I’m extremely grateful for. Narcoleptics with cataplexy lose motor control and faint when experiencing strong emotions like being startled or really happy. Basically, their brain gets tricked into thinking they’re asleep when they’re not. I don’t have that part, and I’m really glad about that.

My narcolepsy is more mild, and that’s part of why I’ve gone so long without getting it diagnosed. It can be really annoying and inconvenient, but it’s not life-threatening in my case. Since I first wrote about it, I’ve been improving my sleep hygiene by getting 8 hours of sleep most nights and trying to keep to a regular sleep/wake cycle that centers around my day job. And my symptoms have improved a bit, but they haven’t gone away. I’ve explained to my managers that I’m working on getting treatment for it, and they’re understanding to a degree, but still get frustrated with me when I fall asleep inappropriately. Sometimes I can stay awake and sometimes I can’t. I suppose that’s what it boils down to. And sometimes I can get 8+ hours of sleep a night, and the next day feel sleepy. I’ve improved my diet again, and that helps, too, but there are still a lot of factors that are beyond my control. And that’s where the treatment comes in.

Watching things like Lissa Rankin’s TedX talk has helped me to understand some of the deeper implications of the problems we experience with our bodies. I’m working on a more holistic approach to… life. It’s all part of the journey. Bumpy though it may be from time to time.

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